Receiving Tremendous Support for Standards
Professional Associations, Clinical Experts and The Media Are All Demanding Adoption of The Standards
Given the extensive work performed to date, we are pleased that so many of the health and mental health professions, organizations and institutions have declared the Standards as essential in the delivery of care to children with cancer and their families. Several national and international level organizations have publicly endorsed and voiced their support for the psychosocial standards of care including the following:
American Academy of Child & Adolescent Psychiatry (AACAP)
American Childhood Cancer Organization (ACCO)
American Psychological Association's Society of Pediatric Psychology (SPP - Division 54)
American Psychosocial Oncology Society (APOS)
Association of Pediatric Hematology/Oncology Educational Specialists (APHOES)
Association of Pediatric Hematology/Oncology Nurses (APHON)
Association for Pediatric Oncology Social Workers (APOSW)
American Society of Pediatric Hematology/Oncology (ASPHO)
Canadian Association of Psychosocial Oncology (CAPO)
Cancer Support Community
Children's Cause for Cancer Advocacy (CCCA)
Children's Oncology Group (COG)
CURE Childhood Cancer
MAHAK: Pediatric Cancer Treatment & Research Center
National Children's Cancer Society
St. Baldrick's Foundation
COG SUPPORTIVE STATEMENT
"As Chair of the Children’s Oncology Group (COG), it is my great pleasure to commend the work of the Psychosocial Standards of Care Project for Childhood Cancer (PSCPCC) team that led to the landmark 2015 publication of their work in Pediatric Blood & Cancer.
The publications comprising the Standards for Psychosocial Care for Children with Cancer and Their Families provide a much needed framework of recommendations for the psychosocial care of children and their families and will serve as the cornerstone of COG’s efforts in this realm. The evidence presented in support of these recommendations will also serve the Children’s Oncology Group well in focusing future research efforts that can bridge gaps in knowledge for how best to provide services essential for comprehensive psychosocial care for our patients and families.
The work of the PSCPCC serves as a remarkable example of the impact partnerships can have, as this effort was not only supported but also inspired by the Mattie Miracle Cancer Foundation. I am confident that this work will benefit current and future generations of children with cancer and their families, and look forward to emerging strategies that will implement these important series of recommendations."
Peter C. Adamson, MD
Chair, Children’s Oncology Group
June 15, 2016
In addition to professional organizations and institutions signing on to officially support and endorse the Standards, we are also garnering media coverage and interest and demand for the incorporation of psychosocial support in comprehensive cancer care for children and their families.
Rally Foundation Endorses Standards of Care
August 11, 2021
We are honored that the Rally Foundation became our 19th professional childhood cancer organization to endorse the Psychosocial Standards of Care. The Rally Foundation shares Mattie Miracle's philosophy that psychosocial support improves health outcomes and quality of life.
The Rally Foundation for Childhood Cancer Research, a 501(c)(3) nonprofit, empowers volunteers across the country to raise awareness and funds for childhood cancer research to find better treatments with fewer long-term side effects and, ultimately, cures. Rally is an international children’s cancer foundation funding pediatric cancer research across the country and worldwide.
MAHAK Endorses Standards of Care
The Psychosocial Standards of Care are used internationally!
We are honored that the MAHAK Pediatric Cancer Treatment and Research Center in Tehran, Iran has become our 18th endorser of the Psychosocial Standards of Care. MAHAK shares Mattie Miracle's philosophy that CHILDHOOD CANCER IS NOT JUST ABOUT THE MEDICINE.
MAHAK is a charity organization in Iran established 29 years ago and continues as an independent NGO exclusively funded by benevolent citizens concerned with the welfare of children with cancer and their families. In 2019, MAHAK operated with 874 paid staff and hundreds of volunteers scattered across Iran, providing full treatment, research, and psychosocial support to every Iranian and non-Iranian family whose child has cancer and is in need of financial and medical support. This inclusive service has been provided to over 35,000 cases as of March 2020, with close to 20,000 active cases receiving treatment and psychosocial support in all public and university hospitals throughout the country with pediatric hematology/oncology wards.