Receiving Tremendous Support for Standards
Professional Associations, Clinical Experts and The Media Are All Demanding Adoption of The Standards
Given the extensive work performed to date, we are pleased that so many of the health and mental health professions, organizations and institutions have declared the Standards as essential in the delivery of care to children with cancer and their families. Several national and international level organizations have publicly endorsed and voiced their support for the psychosocial standards of care including the following:
American Academy of Child & Adolescent Psychiatry (AACAP)
American Childhood Cancer Organization (ACCO)
American Psychological Association's Society of Pediatric Psychology (SPP - Division 54)
American Psychosocial Oncology Society (APOS)
Association of Pediatric Hematology/Oncology Educational Specialists (APHOES)
Association of Pediatric Hematology/Oncology Nurses (APHON)
Association for Pediatric Oncology Social Workers (APOSW)
American Society of Pediatric Hematology/Oncology (ASPHO)
Canadian Association of Psychosocial Oncology (CAPO)
Cancer Support Community
Children's Cause for Cancer Advocacy (CCCA)
Children's Oncology Group (COG)
CURE Childhood Cancer
MAHAK: Pediatric Cancer Treatment & Research Center
National Children's Cancer Society
St. Baldrick's Foundation
COG SUPPORTIVE STATEMENT
"As Chair of the Children’s Oncology Group (COG), it is my great pleasure to commend the work of the Psychosocial Standards of Care Project for Childhood Cancer (PSCPCC) team that led to the landmark 2015 publication of their work in Pediatric Blood & Cancer.
The publications comprising the Standards for Psychosocial Care for Children with Cancer and Their Families provide a much needed framework of recommendations for the psychosocial care of children and their families and will serve as the cornerstone of COG’s efforts in this realm. The evidence presented in support of these recommendations will also serve the Children’s Oncology Group well in focusing future research efforts that can bridge gaps in knowledge for how best to provide services essential for comprehensive psychosocial care for our patients and families.
The work of the PSCPCC serves as a remarkable example of the impact partnerships can have, as this effort was not only supported but also inspired by the Mattie Miracle Cancer Foundation. I am confident that this work will benefit current and future generations of children with cancer and their families, and look forward to emerging strategies that will implement these important series of recommendations."
Peter C. Adamson, MD
Chair, Children’s Oncology Group
June 15, 2016
In addition to professional organizations and institutions signing on to officially support and endorse the Standards, we are also garnering media coverage and interest and demand for the incorporation of psychosocial support in comprehensive cancer care for children and their families.
Rally Foundation Endorses Standards of Care
August 11, 2021
We are honored that the Rally Foundation became our 19th professional childhood cancer organization to endorse the Psychosocial Standards of Care. The Rally Foundation shares Mattie Miracle's philosophy that psychosocial support improves health outcomes and quality of life.
The Rally Foundation for Childhood Cancer Research, a 501(c)(3) nonprofit, empowers volunteers across the country to raise awareness and funds for childhood cancer research to find better treatments with fewer long-term side effects and, ultimately, cures. Rally is an international children’s cancer foundation funding pediatric cancer research across the country and worldwide.
MAHAK Endorses Standards of Care
The Psychosocial Standards of Care are used internationally!
We are honored that the MAHAK Pediatric Cancer Treatment and Research Center in Tehran, Iran has become our 18th endorser of the Psychosocial Standards of Care. MAHAK shares Mattie Miracle's philosophy that CHILDHOOD CANCER IS NOT JUST ABOUT THE MEDICINE.
MAHAK is a charity organization in Iran established 29 years ago and continues as an independent NGO exclusively funded by benevolent citizens concerned with the welfare of children with cancer and their families. In 2019, MAHAK operated with 874 paid staff and hundreds of volunteers scattered across Iran, providing full treatment, research, and psychosocial support to every Iranian and non-Iranian family whose child has cancer and is in need of financial and medical support. This inclusive service has been provided to over 35,000 cases as of March 2020, with close to 20,000 active cases receiving treatment and psychosocial support in all public and university hospitals throughout the country with pediatric hematology/oncology wards.
Momcology Endorses Standards of Care
July 23, 2019
We are proud to announce our 17th professional endorser of the Psychosocial Standards of Care. Through this partnership we hope to enhance awareness of these vital Standards within the advocacy community, so that families understand the importance of having access to optimal psychosocial care and support. As this support directly impacts the efficacy of treatment and enhances quality of life.
Momcology has reached over 8,500 families and the connections and friendships made, information shared, and events held, have become an integral part of the cancer caregiver story and continues to transform life after diagnosis for many families who connect with Momcology. Momcology has become both the peer and professionally recommended resource for responsible online and in-person peer social support and has inspired countless new connecting efforts. Momcology currently connects over 200 families per month to secure, moderated and guideline-based online support, and has built a much-needed community, including efforts to develop wrap-around programs focused on meeting the needs to support a growing population of hurting parents.
St. Baldrick's Foundation Endorses Standards of Care
June 14, 2017
The St. Baldrick's Foundation is the largest nongovernmental funder of childhood cancer research grants, funding more than $200 million since 2005 to support the most promising childhood cancer research. As a volunteer-powered organization, St. Baldrick's empowers its supporters to raise funds through various fundraising platforms and advocate for childhood cancer issues through its Speak Up For Kids Cancer network. St. Baldrick's endorsement of the Standards adds another industry leader to the already impressive list of international organizations endorsing the Standards.
American Society of Pediatric Hematology/Oncology Endorses Standards of Care
April 13, 2017
ASPHO, a multidisciplinary organization dedicated to promoting the optimal care of children, adolescents and young adults with blood disorders and cancer by advancing research, education, treatment, and professional practice, has endorsed the Psychosocial Standards of Care for Children with Cancer and their Families. ASPHO's endorsement of the Standards adds another industry leading association to the already impressive list of international organizations endorsing the Standards.
Children's Cause for Cancer Advocacy Endorses the Psychosocial Standards of Care
March 14, 2017
The Children's Cause for Cancer Advocacy (CCCA) formally endorsed the Psychosocial Standards of Care for Children with Cancer and Their Families. CCCA is a leading national nonprofit organization working since 1999 to achieve more rapid access to less toxic and more effective therapies; to expand resources for childhood cancer research and care; and to address the needs and challenges of childhood cancer survivors and their families. The Children's Cause is the strong advocacy and policy voice for children with cancer in national debates on research, new therapy development and health care reform.
B+ Foundation Endorses the Psychosocial Standards of Care
February 10, 2017
The B+ Foundation publicly endorsed the Psychosocial Standards of Care. The B+ Foundation honors the life of Andrew McDonough. The B+ Foundation is about Kids Helping Kids Fight Cancer. They raise money through dance marathons, 5Ks, T-shirt sales and more, to provide financial and emotional support to families of children with cancer nationwide. The B+ Foundation also funds critical, cutting-edge childhood cancer research. Mattie Miracle is pleased to have their support!
American Childhood Cancer Organization Endorses the Psychosocial Standards of Care
November 3, 2016
The American Childhood Cancer Organization (ACCO) formally endorsed the Psychosocial Standards of Care for Children with Cancer and Their Fmailies. ACCO is dedicated to fighting this last great disease killer of children. They are engaged in this ongoing struggle because they understand the emotional and physical toll childhood cancer takes on its victims and their families, because we ourselves have been touched by it. Mattie Miracle is pleased to have their continued support!
Cancer Support Community Endorses Standards of Care
September 8, 2016
The Cancer Support Community, an international cancer nonprofit, has endorsed the Psychosocial Standards of Care for Children with Cancer and their families that were published in a 2015 special issue of Pediatric Blood and Cancer. The scientific, evidence-based psychosocial standards define a minimum level of care that all children with cancer and their families should receive. The Mattie Miracle Cancer Foundation spearheaded the effort to create and implement Standards of Care to ensure patients and families have access to a minimum level of psychosocial care from the time of diagnosis, through survivorship, or end of life and bereavement care.
National Children’s Cancer Society Endorses New Standards of Psychosocial Care
May 25, 2016
NCCS has endorsed the new publication, Standards of Psychosocial Care for Children With Cancer and their Families, for highlighting many of the needs of families facing pediatric cancer. The publication offers the first national standards for the psychosocial care of children with cancer and their families. The standards are a road map for health-care providers from the moment of diagnosis into survivorship or bereavement. They were developed at the urging of parents Vicki and Peter Brown, based on the issues they faced during the years their only son fought bone cancer, which he ultimately lost.
Society of Pediatric Psychology (SPP), A Division of the American Psychological Association Endorses Standards
The Society of Pediatric Psychology’s Executive Committee endorsed
the Psychosocial Standards of Care in Childhood Cancer that were published in December 2105. Many Division 54 members were active participants in the standards development....
National Institutes of Health Profiles Core Research Team Member
January 29, 2016
Guidelines Help Caregivers Meet Cancer Patients’ Needs
Dr. Lori Wiener has witnessed the importance of maintaining a child’s emotional well-being during cancer treatment. Her experiences led her to be a senior leader of a project....
American Society of Clinical Oncology (ASCO) Blogs About The Standards
January 25, 2016
The Mattie Miracle Cancer Foundation spearheaded the effort to create and implement Standards of Care to ensure patients and families have access to a minimum level of psychosocial care from the time of diagnosis, through survivorship or end-of-life and bereavement care....
American Psychosocial Oncology Society (APOS) Endorses Standards of Care
January 4, 2016
The American Psychosocial Oncology Society (APOS) has endorsed the "Psychosocial Standards of Care for Children with Cancer and Their Families" published in a December 2015 special supplement of Pediatric Blood and Cancer. The scientific, evidence-based psychosocial standards define the psychosocial care that....
American Academy of Child & Adolescent Psychiatry (AACAP) Endorses Standards of Care
November 13, 2015
At the World Congress of Psycho-Oncology, leading researchers and clinicians dedicated to the psychosocial needs of children with cancer announced the completion of the Psychosocial Standards of Care to be published....
Association of Pediatric Hematology/Oncology Nurses (APHON) Endorses Standards of Care
October 13, 2015
The Association of Pediatric Hematology/Oncology Nurses (APHON) has endorsed the Psychosocial Standards of Care for Children with Cancer and their families to be published in a 2015 special issue of....
Oncology Nursing News Announces Pending Publication of The Standards of Care
September 2, 2015
Psychosocial Standards of Care for Children For children with cancer there is a medical standard for care to ensure children have access to a minimum level of medical treatment, but there was no standard of care for the psychological, emotional, and psychosocial needs of children with cancer and their families—until now. In November 2009, just less than....
eHospice Profiles Co-Founder for Her IOM Presentation on Standards of Care
July 7, 2015
At a meeting hosted by the Institute of Medicine held in March this year Victoria Sardi-Brown speaks to healthcare professionals about the need for everyone to recognise and acknowledge pain and negative psychosocial effects of a cancer diagnosis on children and their families....
One Couple's Loss Led to a Push for Psychosocial Care for Kids with Cancer
December 29, 2015
What has stuck with Vicki and Peter Brown for years, beyond the enduring grief of losing their only child, Matthew, are the emotional traumas they all suffered during his struggle with a rare form of bone cancer. Living in a hospital for months on end......
Childhood Cancer Talk Radio
March 3, 2016
Mattie Miracle Co-founders are interviewed by Janet Demeter on Childhood Cancer Talk Radio about their story, the Psychosocial Standards of Care Project and the importance of having adequate psychosocial support from date of diagnosis through survivorship and bereavement.
Forward Motion Interviews Co-Founders
February 24, 2016
Host Karen Allyn interviews Mattie Miracle Cancer Foundation co-founders Victoria Sardi-Brown and Peter Brown about their story, the foundation and the psychosocial standards of care.
Interview with Psycho-Oncologist Andrea Patenaude
July 31, 2015
Andrea F. Patenaude, PhD, of Dana-Farber Cancer Institute, discusses the challenges to implementing standards for pediatric and adolescent psycho-oncology and looks ahead at next steps in the field.