Psychosocial Core Team Presents At Coalition Against Childhood Cancer (CAC2) All Member Webinar
December 16, 2015
The Core Research Team presented to the CAC2 Membership on the Psychosocial Standards of Care for Children With Cancer and Their Families during a webinar. The presentation was recorded and is posted to YouTube along with the audio track, so click on the image to the left to see and listen to the presentation.
Association of Pediatric Hematology/Oncology Nurses Endorses Psychosocial Standards of Care
October 13, 2015
The Association of Pediatric Hematology/Oncology Nurses (APHON) announced their formal, professional endorsement of the Psychosocial Standards of Care for Children with Cancer and Their Families. APHON's endorsement represents the first of many professional associations that are endorsing the standards as essential care necessary for children with cancer and their families.
Mattie Miracle Funds Child Life Specialist and Family Snack & Item Cart for Fifth Year
September 25, 2015
Mattie Miracle endows the Mattie Miracle Child Life Program Fund at MedStar Georgetown University Hospital. This fund pays the salary of a child life specialist, a professional who supports 3,500 children and families each year. In addition, the Foundation launched its brand new ORANGE snack and item cart, which revolves around the pediatric units three times a week and provides free items to over 1,500 families a year.
Mattie Miracle Sponsors CureFest 2015
September 19-20, 2015
Mattie Miracle was proud to be a Bronze Sponsor of CureFest for Childhood Cancer, in Washington, DC on the Capitol Mall. The childhood cancer community and the general public stood together as one voice against childhood cancer. Over 1,000 people of all ages were in attendance. There were presentations made by advocates, childhood cancer survivors, and a three mile walk with the US Capitol and the Washington Monument in the background. Mattie Miracle was one of 77 childhood cancer organizations with an exhibit booth at the event.
American Society of Clinical Oncology POST publishes Video Summary of our Psychosocial Standards of Care Symposium
August 19, 2015
The ASCO Post presents this special video of Andrea Patenaude, Ph.D, Director of Psychology Research and Clinical Services, Dana-Farber Cancer Institute, Boston, Massachusetts, of our Symposium on the Psychosocial Standards of Care Project at the APOS / IPOS World Congress in July 2015. The video is a short and informative summary of the Standards project and what it significant represents to children with cancer and their families.
2015 World Congress of Psycho-Oncology
July 31, 2015
WASHINGTON, PRNewswire - Today, at the World Congress of Psycho-Oncology, leading researchers and clinicians dedicated to the psychosocial needs of children with cancer announced the completion of the Psychosocial Standards of Care to be published in a 2015 special issue of Pediatric Blood and Cancer.
Mattie Miracle Cancer Foundation Announces Completion Of Psychosocial Standards Of Care For Children With Cancer
July 28 - August 1, 2015
Mattie Miracle participated in the International Psycho-Oncology Society and the American Psychosocial Oncology Society World Congress in Washington, DC. Mattie Miracle hosted a symposium during the conference to present the Standards of Care for Children with Cancer and their Families. This was the first time a set of standards for psychosocial care of children and their families will be presented to an international community.
McCaul, Van Hollen, Speier, Reed, and Capito Introduce Bipartisan Childhood Cancer STAR Act
Wednesday, July 29, 2015
Both the House (H.R 3381) and the Senate (S.1883) introduced the STAR Act of 2015. The Childhood Cancer STAR Act will improve many efforts including improve the quality of life for childhood cancer survivors, and identify opportunities to expand and make accessible the proper psychosocial care to treat the 15,780 children diagnosed with cancer in the U.S. every year.
IOM Report on Comprehensive Cancer Care for Children and Families Mentions Mattie Miracle and Calls for Psychosocial Support
Monday, July 20, 2015
The July 2015 IOM Report on Comprehensive Cancer Care for Children and Their Families profiles Mattie Miracle's Co-Founder Victoria Sardi-Brown and covers extensively the need for psychosocial support for children with cancer. Read the full report by clicking the Read More link.
Mattie Miracle Annual Walk & Family Festival rasies $78,766, exceeding goal
Sunday, May 17, 2015
The sixth annual Walk & Family Festival was held on May 17, 2015, at the St. Stephen's and St. Agnes upper school campus in Alexandria, VA. Thanks to our 7 corporate sponsors, 17 walk teams, 350 individual supporters, and 408 attendees, the Foundation surpassed its $60,000 goal!
Mattie Miracle Presents at the Institute of Medicine
The Institute of Medicine (IOM) held a workshop on the Comprehensive Cancer Care for Children and their Families. The workshop, hosted by the National Cancer Policy Forum and the American Cancer Society (ACS), examined recent trends in comprehensive cancer care for pediatric cancer patients and their families in consideration of potential policy actions to improve care and outcomes.
Mattie Miracle's Co-Founder Victoria Sardi-Brown was invited to speak and share her story of Mattie's treatment and the importance of psychosocial support.
Daisy Troop Selects Mattie Miracle for Bronze Award Project
March 1, 2015
On March 17, Mattie Miracle's President was invited to the St. Stephen's and St. Agnes Lower School to meet with their fifth grade Daisy Girl Scout Troop. Liv Cooper, a scout, encouraged her Troop to consider doing a service project for Mattie Miracle in order for them to earn their Bronze Award. To qualify for a Bronze Award the Troop must work 20 hours as a team, explore their community, choose their project, plan it, put it in motion, and spread the word about their project in the community.
Mattie Miracle Sponsors Think Tank for Development of Psychosocial Standards for Children with Cancer and Their Families
The Mattie Miracle Cancer Foundation sponsored the first ever Think Tank in support of the development of psychosocial standards of care for children with cancer and their families. This historic event took place at the 10th Annual Conference of the American Psychosocial Oncology Society in Huntington Beach, CA.
Reporter Beth Parker from Fox5DC Story on Candy to Remember Mattie
Fox5DC's Beth Parker profiles a story behind the Mattie Miracle Cancer Foundation's annual candy drive to stock an in-patient snack cart for childhood cancer families, and the memory of their son Mattie whom they lost to childhood cancer.
Story on The Importance of Child Life Specialists for Children with Cancer
Beth Parker, reporter for Fox5 DC does an insightful and touching piece on the role of Child Life Specialists in using techniques like medical play, to help children with cancer and their families. Jess Abrams, the Child Life Specialist featured in the story, holds a position funded by the Mattie Miracle Cancer Foundation. We recognize the importance of psychosocial support and the need to have a comprehensive, psychosocial team in place at all times to provide the much needed and necessary support to children with cancer and their families.